What we do...

Expert...Expert

During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you've also learned something that can be of value to others.

World Conferences

Each two years, we organize an international conference on CdLS. At these events, experts on all the many aspects of this complex syndrome come together. We all learn and reach out to each other.

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.