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CdLS es un largo viaje; a veces difícil y oscuro, pero a menudo se llega a un lugar soleado. Hablar sobre eso te ayuda a sobrellevar el viaje. Comparta sus historias y escuche las de los demás.

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Muchos de nuestros grupos han descubierto las cosas buenas de las redes sociales. Puedes hacer amigos, contar tu historia y leer, reír o compartir tus emociones. Algunas veces su historia puede ser notada y es posible que se lo invite a contarlo a un público más amplio.

Here we present news from the worldwide Cornelia de Lange syndrome community. We invite everybody to come here and tell us about your community events, you community milestones.

For personal stories we recommend that you go to your personal dashboard and add them there, if you want they will show in this blog after you completed your story 

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cdlsWorldConsensus

There is a great work of volunteer experts completed. The first international agreed collection of all we know about CdLS ... Read more…
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Website changed

The website should be 'calm' and easy to read, with less distractions. Please read ... Read more…

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.