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Our mission

"We are determined to contribute to an early and accurate diagnosis of the Cornelia de Lange syndrome (CdLS), to support research into aspects of the syndrome, to help people with CdLS and to parents, brothers and sisters, grandparents, families help carers and doctors to make decisions based on good information. ""

CdlS World has been founded in 2001 in occasion of the first International CdLS Conference and currently it's members support families in algeriet , argentina , australien , belgium , brasilien , canada , colombia , danmark , det forenede kongerige , finland , forenede stater , frankrig , irland , israel , italien , malaysia , nederlandene , norge , nye zealand , philippinerne , polen , portugal , schweiz , singapore , spanien , sverige , tyskland , østrig  and is maintaining contact with single  families in many more countries. We welcome groups that would like to join the federation. 

CdLS World; what do we do?

  1. From all over the world the Experts who know most about CdLS and a specific topic have formed a international Scientific Advise Committee (SAC). We make sure the SAC is informed about needs of the families and caretakers, so they can publish relevant news, present on conferences and answer questions in our Ask the Expert service;
  2. To act as a forum of best practice for support group services for people with CdLS, including organizing an International Conference every two years;
  3. to act as a resource base for the wider families of people affected by CdLS throughout the world for both research and for families.  

Our community around CdLS

 

Our national contact points for support

Vereniging Cornelia de Lange syndroom

Netherlands, Belgium

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Other numbers

Vores kommunitet

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Dansk

Cornelia de Lange foreningen

danmarknorgesverigefinland
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English

CdLS Foundation UK and Ireland

det forenede kongerigeirland
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Español

Asociación Española Síndrome de Cornelia de Lange (AESCdL)

spanien
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English

Canadian CdLS Foundation

canada
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עברית

(CdLS) האגודה הישראלית תסמונת קורנליה דה לנגה

israel
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Deutsch

Arbeitskreis Cornelia de Lange Syndrom e.V.

tysklandøstrigschweiz
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Español

Comunidad Argentina del Sindrome Cornelia de Lange

argentina
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Português

Associação Brasileira Síndrome Cornélia de Lange

brasilien
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Italiano

Ass. Naz. di Volontariato Cornelia De Lange ONLUS

italien
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Português

Rarissimas - Associação Nacional de Deficiências Mentais e Raras

portugal
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Nederlands

Vereniging Cornelia de Lange syndroom

nederlandenebelgium
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Français

ASSOCIATION FRANÇAISE DU SYNDROME DE CORNELIA DE LANGE

frankrigschweizbelgiumalgeriet
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Polski

Stowarzyszenie Dzieci i Rodzin Cornelia de Lange Syndrom (CdLS) w Polsce

polen
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English

the Cornelia de Lange Syndrome (CdLS) Foundation USA

forenede stater
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English

The Cornelia de Lange Syndrome Association (Australasia) Inc (CdLSA)

australiennye zealandmalaysiaphilippinernesingapore
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Español

Fundación CdLS COLOMBIA

colombia

Om indholdet af hjemmesiden

Alle oplysninger på dette websted er udelukkende til undervisningsformål. Det er din læge, der er det rette sted at få specifik medicinsk rådgivning, diagnoser og behandling. Brug af dette websted sker udelukkende på eget ansvar. Hvis du finder noget, som du mener, der skal rettes eller præciseres, bedes du give os besked på: 

Send en e-mail: info@cdlsWorld.org