Usted está cordialmente invitado a unirse a nosotros en la 8ª Conferencia Internacional de Síndrome de Cornelia de Lange. Que se celebrará en Lisboa, Portugal 2015. lugares exactos serán anunciados más cerca del tiempo. Vea este sitio para las actualizaciones.
An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope...
CdLS es un raro, complejo síndrome! Que es, como puede ser diagnosticado y cual es la mejor manera de tratar ciertos aspectos?
CdLS is a long journey; sometimes inscrutable and dark, yet you can end up in sunny places. Talking is dealing with emotions.
Hear our stories,
Share your story
You’re told a person you care for has CdLS. It is very rare, so it is hard to find the support you need. We can link you with nearby support groups.
Join a group
We all have questions on the care and wellbeing of our loved ones with CdLS. Search what others have asked before.
No question is too big or small to ask.
Ask a question
During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you also learned something that can be of value to others.
Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.