Cornelia de Lange syndrome

a place to see, talk, learn and share !

Join us Our dream

find a answer

Thanks to working together worldwide we were able to collect a lot of useful information and experiences about the Cornelia de Lange syndrome.

Do you need help

Are you new here? Do you find it overwhelming? Start at the beginning and let us, step by step, guide you and introduce you with CdLS.

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Our community around CdLS

What can you find here

Guidelines, Know-how's

211

Stories of Parents

440

Questions with Answers

650

National supportgroups

21

Other numbers

More about CdLS

Knowing what your child has is important! What is this syndrome? Why do you get it? How can you treat it? We have collected all available information to tell you!

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Share your stories and hear those of others

CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey.

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Meeting others

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.

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Ask our experts

We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.

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Our vision

A dream for our community

With the Cornelia de Lange World federation we have a dream. To share our dream with you in order to convince you to join us we made this video to show you what seeing, talking, learning and sharing is about.

About the website contents

All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.