Cornelia de Lange Syndrome


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8 - ème Conférence mondiale SCDL

Vous êtes cordialement invités à vous joindre à nous lors de la 8e Conférence syndrome Cornelia de Lange international. Qui se tiendra à Lisbonne, Portugal, 2015. lieux exacts seront annoncés plus près du temps. Surveillez ce site pour les mises à jour.

The world of Cornelia de Lange Syndrome

Le Monde du Syndrome de Cornelia de Lange

Bienvenue à la source d'Information internationale de la maladie rare du Syndrome de Cornelia de Lange (SCDL). Ici, vous trouverez une Main Tendue, de l'Aide à vos questions et de l'Espoir.


Apprendre

Learn...
Le Syndrome de Cornelia de Lange est un syndrome rare et complex!  
Ce qu'il est, comment vous pouvez le reconnaître, comment vous pouvez traiter au mieux chaque particularité.

Apprendre à ce sujet ...

Learn more

Tell...Tell

CdLS is a long journey; sometimes inscrutable and dark, yet you can end up in sunny places. Talking is dealing with emotions.

Hear our stories,

Share your story

Support...Support

You’re told a person you care for has CdLS. It is very rare, so it is hard to find the support you need. We can link you with nearby support groups.

Join a group

Ask...Ask

We all have questions on the care and wellbeing of our loved ones with CdLS. Search what others have asked before.

No question is too big or small to ask.

Ask a question

Expert...Expert

During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you also learned something that can be of value to others.

Share expertise

Meet...Meet

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.

Get connected