World of Cornelia de Lange Syndrome

8-th CdLS World Conference

From 9-12 September the 8-th CdLS World conference showed very good presentations of world experts from many countries. We hope to see yo at the 9-th conference in 2017 in Brazil

The world of Cornelia de Lange Syndrome

An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope...


CdLS is a rare and complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? We aim to provide some answers.

Learn more


CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey. Share your stories and hear those of others.

Share your story


You’re told a person you care for has CdLS. It is very rare, so it's hard to find the support you need. We can link you with nearby support groups.

Join a group


We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.

Ask a question


During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you've also learned something that can be of value to others.

Share expertise

Meet...  Meet

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.

Get connected