Cornelia de Lange Syndrome


9. Weltkonferenz der CdLS

2017 wird die cdls-Welt-Konferenz im schönen Brasilien sein. Eine große Chance für Menschen in Südamerika zu lernen und zu treffen. Und eine tolle Urlaubsreise für Familien aus der ganzen Welt

The world of Cornelia de Lange Syndrome

An International source of information about the rare genetic condition, Cornelia de Lange Syndrome (CdLS). Here you can find people who know about CdLS as well as answers to your questions about the condition. Here you can find hope...


Learn...Learn

CdLS is a rare and complex syndrome! What is it, how can it be diagnosed and what are the best ways to treat its many aspects? We aim to provide some answers.

Learn more

Tell...Tell

CdLS is a long journey; sometimes difficult and dark but often you arrive at a sunny place. Talking about it helps you cope with the journey. Share your stories and hear those of others.

Share your story

Support...Support

You’re told a person you care for has CdLS. It is very rare, so it's hard to find the support you need. We can link you with nearby support groups.

Join a group

Ask...Ask

We all have questions on the care and wellbeing of our loved ones with CdLS. Search the questions others have asked before. No question is too big or too small to ask.

Ask a question

Expert...Expert

During our journey with CdLS we all learn a lot. We want to share that with you! Maybe you've also learned something that can be of value to others.

Share expertise

Meet...  Meet

Globally, there are others in the same situation as you. If they connect to us we can help you find them. Maybe you want to meet someone nearby with similar experiences.

Get connected