SAC Members
Last modified by Ulla Mugler on 2009/07/11 23:11
The CdLS World Scientific Advisory Council (SAC)
The establishment of the SAC has been designed to coordinate, support and develop resources in all countries where people with CdLS live. The SAC is multidisciplinary support group of more than 40 international medical professionals which covers 23 different areas of expertise. Additionaly to the SAC our country members also have their own national SAC or other structures of professional support which are connected to the SAC in the person of the Professional Director (PD) of each country member. Objectives of the SAC
Chairman: Angelo Selicorni (Italy, PD)
Emeritus Professor:
Laird Jackson (USA)
Anaesthesia:
Aaron Zuckerberg (USA)
Behaviour:
Tom Gualtieri (USA)
Chris Oliver (UK)
Cardiology:
Anna Maria Colli (Italy)
Dentistry:
Dick Mungo (USA)
Doug Clemens (USA)
Developmental Biology - Research:
Anne Caloff (USA)
Education:
Mary Morse (USA)
Emanuele Basile (Italy)
ENT:
Bob Sataloff (USA)
Paola Marchisio (Peds, Italy)
Genetics - Clincal:
Toni Kline (USA PD)
Angelo Selicorni (Italy PD)
David Fitzpatrick (UK PD)
Armand Bottani (Switzerland PD)
Meredith Wilson (Australia PD)
Raoul Hennekam (Netherlands PD)
Valérie Cormier-Daire (France PD)
Genetics - Research
Laird Jackson (USA) Emeritus PD
Iain Krantz (USA)
Tom Strachan (UK)
GI Medical:
Carol Potter (USA)
Peter Gillett (UK)
Peggy Marcon (Canada) Schmidt-Choudhury (Germany, PD)
GI Surgery:
Sergio Luzzani (Italy) Neonatology:
Luigi Memo (Italy)
Neurophysiologist/Neurology:
Carsten Bonnemann (USA)
José Pedro Vieira (Portugal PD)
Nutrition:
Joni Rampolla (USA)
OB/Gyn:
Natalie Blagowidow (USA)
Shoko Shimizu (Japan)
Ophthalmology:
Alex Levin (Canada PD)
Ken Nischal (UK)
Orthopaedics:
Antonio Memeo (Italy)
Paul Sponseller (USA)
Paediatrics:
Jolanta Wierzba (Poland, PD)
Lene Lavard (Denmark, PD)
Psychiatry:
Eileen Ahearn (USA)
Marco Grados (USA)
Psychology:
John Morse (USA)
Radiologist:
Mark Kliewer (USA)
Speech & Language/feeding:
Marjorie Goodban (USA)
Cheri Carrico (USA)
Vocational Rehabilitation/OT/PT
Amy Metrena (USA)
Milagros Cordero (USA)
The establishment of the SAC has been designed to coordinate, support and develop resources in all countries where people with CdLS live. The SAC is multidisciplinary support group of more than 40 international medical professionals which covers 23 different areas of expertise. Additionaly to the SAC our country members also have their own national SAC or other structures of professional support which are connected to the SAC in the person of the Professional Director (PD) of each country member. Objectives of the SAC
1. To ensure that each child/ family affected by CdLS worldwide shall have access to Email, phone and/or clinical consultation delivered by professionals with CdLS expertise. 2. To provide professional clinical and educational support to the CdLS World Federation. 3. To promote research regarding CdLS.SAC Members
Chairman: Angelo Selicorni (Italy, PD)
Emeritus Professor:
Laird Jackson (USA)
Anaesthesia:
Aaron Zuckerberg (USA)
Behaviour:
Tom Gualtieri (USA)
Chris Oliver (UK)
Cardiology:
Anna Maria Colli (Italy)
Dentistry:
Dick Mungo (USA)
Doug Clemens (USA)
Developmental Biology - Research:
Anne Caloff (USA)
Education:
Mary Morse (USA)
Emanuele Basile (Italy)
ENT:
Bob Sataloff (USA)
Paola Marchisio (Peds, Italy)
Genetics - Clincal:
Toni Kline (USA PD)
Angelo Selicorni (Italy PD)
David Fitzpatrick (UK PD)
Armand Bottani (Switzerland PD)
Meredith Wilson (Australia PD)
Raoul Hennekam (Netherlands PD)
Valérie Cormier-Daire (France PD)
Genetics - Research
Laird Jackson (USA) Emeritus PD
Iain Krantz (USA)
Tom Strachan (UK)
GI Medical:
Carol Potter (USA)
Peter Gillett (UK)
Peggy Marcon (Canada) Schmidt-Choudhury (Germany, PD)
GI Surgery:
Sergio Luzzani (Italy) Neonatology:
Luigi Memo (Italy)
Neurophysiologist/Neurology:
Carsten Bonnemann (USA)
José Pedro Vieira (Portugal PD)
Nutrition:
Joni Rampolla (USA)
OB/Gyn:
Natalie Blagowidow (USA)
Shoko Shimizu (Japan)
Ophthalmology:
Alex Levin (Canada PD)
Ken Nischal (UK)
Orthopaedics:
Antonio Memeo (Italy)
Paul Sponseller (USA)
Paediatrics:
Jolanta Wierzba (Poland, PD)
Lene Lavard (Denmark, PD)
Psychiatry:
Eileen Ahearn (USA)
Marco Grados (USA)
Psychology:
John Morse (USA)
Radiologist:
Mark Kliewer (USA)
Speech & Language/feeding:
Marjorie Goodban (USA)
Cheri Carrico (USA)
Vocational Rehabilitation/OT/PT
Amy Metrena (USA)
Milagros Cordero (USA)
