World Communities

CdlS World has been founded in 2001 in occasion of the first International CdLS Conference and  counts many members (Argentina, Australia, Brazil, Canada, Denmark, France, Germany, Italy, Netherlands, Poland, Portugal, Spain, UK, USA) and is maintaining contact with single  families in more than 45  countries. We welcome groups that would like to join the federation. 

CdLS World; what do we do?

  1. From all over the world the Experts who know most about CdLS and a specific topic have formed a international Scientific Advise Committee (SAC). We make sure the SAC is informed about needs of the families and caretakers, so they can publish relevant news, present on conferences and answer questions in our Ask the Expert service;
  2. To act as a forum of best practice for support group services for people with CdLS, including organizing an International Conference every two years;
  3. to act as a resource base for the wider families of people affected by CdLS throughout the world for both research and for families.  

A continuación la lista de nuestros países miembros

(Si desea estar conectado con su Organización Nacional CdLS  de apoyo y / o familias de estos países, por favor seleccione el país para ver la información de contacto) 

Australia (Malasia/  Nueva Zelanda)Portugal
DinamarcaReino Unido Irlanda
Francia (Suiza)
Estados Unidos de America

Si usted reside en un país inexistente en la lista anterior nosotros podemos ayudarlo a contactarse con otras familias (por favor haga click en el: país inexistente en la lista anterior).  


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All of the information contained within these questions and answers is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know, contact see below.