Let us learn from you


Hello , welcome to cdlsworld.org

We are pleased to see that you are interested in the Cornelia de Lange syndrome (CdLS). You can find a lot of information on this website, information that is needed so much for families, professionals and other people involved around the world.

After you have finished your registration on CdLS-world, you can:

  • read experiences of others, without limitations;
  • help yourself and others by asking your question to the expert;
  • help answering questions as a professional;
  • become member of a support group in your country;
  • get in contact with other families.

Let us learn from you

As you will probably know, the knowledge about CdLS is far from complete. This knowledge will become better and more complete in time. Professional interest and involvement, combined with the practical, everyday information given by familymembers will spur the improvement of knowledge and raise awareness around the globe.

Help yourself and others, tell us more about yourself and your interests for CdLS.

Hello $sender.first_name, let's get to know each other better...

Can you help us complete your registration by providing some additional information?

1 - Which community?

Participants participate within a community where you feel (or can start to feel) most at home


2 - Your motivation

Please tell us about your motivation for becoming a member.

Cornelia de Lange Syndrome



3 - How can we help, how can you help?

How can we help, how can you help?



4 - Finally

Our organisation takes your Privacy seriously. We do not want to send unwanted messages.

The button above will become active if you have ticked at least one of the above options. Please take the time to answer these questions, we will always treat your information with the utmost care and discretion. As most of us are volunteers, it may take some time for us to approve your request, so please be patient.

About the website contents

All of the information on this WebSite is for education purposes only. The place to get specific medical advice, diagnoses, and treatment is your doctor. Use of this site is strictly at your own risk. If you find something that you think needs correction or clarification, please let us know at: 

Send a email: info@cdlsWorld.org