Introduction Video
Last modified by Gerritjan Koekkoek on 2009/08/15 07:32
In 2009 World Conference in for Cornelia de Lange syndrome, in Brighton, we announced the new multi-language website.
Each member country can translate all the information, creating a information hub about this rare syndrome.
The site contains the 'Ask the Doctor'. Questions about the syndrome are collected and transalted so that others can view the question and answer. This creates a unique information source that will help families, caregivers and medical people who are not so familiar with this syndrome.
Each member country can translate all the information, creating a information hub about this rare syndrome.
The site contains the 'Ask the Doctor'. Questions about the syndrome are collected and transalted so that others can view the question and answer. This creates a unique information source that will help families, caregivers and medical people who are not so familiar with this syndrome.
