CdLS World Federation
Modificado por Gerritjan Koekkoek em 2011/05/18 11:44
CdlS World has been founded in 2001 in occasion of the first International CdLS Conference and counts actually 13 country members (Australia, Canada, Denmark, France, Germany, Italy, Japan, Netherlands, Poland, Portugal, Spain, UK, USA) and is maintaining contact with single families in more than 45 countries.
What does CdLS World do?
- Liaise with the International Scientific Advisory Committee (SAC) and to manage it to the benefit of all member countries;
- To act as a forum of best practice for support group services for people with CdLS, including holding an International Conference every two years;
- to act as a resource base for the wider families of people affected by CdLS throughout the world for both research and for families.
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