WhatWeDo

What does CdLS World do?

1. Liaise with the International Scientific Advisory Committee (SAC) and to manage it to the benefit of all member countries;
2. To act as a forum of best practice for support group services for people with CdLS, including holding an International Conference every two years;
3. to act as a resource base for the wider families of people affected by CdLS throughout the world for both research and for families.