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The Scientific Advisory Council is made up of medical and other professionals who take responsibility for the shared knowledge of specialties. Its goal is to help families, researchers and other professionals understand the complexities of the syndrome. The Council also includes “Professional Directors” from countries around the world who represent the Federation among their own professional communities and are a focal point for SAC information within that country.

 
SCIENTICIC ADVISORY COUNCIL 
 
Chairman:
Angelo Selicorni (Italy, PD)
 

Emeritus Professor:

Laird Jackson (USA)

 
Education:

Mary Morse (USA)
Emanuele Basile (Italy)

 
Vocational Rehabilitation/OT/PT

Amy Metrena (USA)
Milagros Cordero (USA)

            
Psychology:

John Morse (USA)

            
Behaviour:

Tom Gualtieri (USA)
Chris Oliver (UK)

            
Psychiatry:

Eileen Ahearn (USA)
Marco Grados (USA)

             
Speech & Language/feeding:

Marjorie Goodban (USA)
Cheri Carrico (USA)

             
Ophthalmology:

Alex Levin (Canada PD)
Ken Nischal (UK)

            
Research Genetics:

Laird Jackson (USA) – Emeritus PD
Iain Krantz (USA)
Tom Strachan (UK)

             
Research: Developmental Biology

Anne Caloff (USA)

             
Clinical Genetics:

Toni Kline (USA PD)
Angelo Selicorni (Italy PD)
David Fitzpatrick (UK PD)
Armand Bottani (Switzerland PD)
Meredith Wilson (Australia PD)

Raoul Hennekam (Netherlands PD)
Valérie Cormier-Daire (France PD)

             
ENT:

Bob Sataloff (USA)
Paola Marchisio (Peds, Italy)

 
Paediatrics:

Jolanta Wierzba (PD, Poland)

             
Orthopaedics:

Antonio Memeo (Italy)
Paul Sponseller (USA)

             
Neurophysiologist/Neurology:

Carsten Bonnemann (USA)
José Pedro Vieira (Portugal PD)

 
Radiologist:

Mark  Kliewer (USA)

            
GI Medical:

Carol Potter (USA)
Peter Gillett (UK)
Peggy Marcon (Canada)

             
GI Surgery:

Sergio Luzzani (Italy)

            
Dentistry:

Dick Mungo (USA)
Doug Clemens (USA)

             
Nutrition:

Joni Rampolla (USA)

             
OB/Gyn:

Natalie Blagowidow (USA)
Shoko Shimizu (Japan)Shoko Shimizu (Japan)

 
Neonatology:

Luigi Memo

 
Anaesthesia:

Aaron Zuckerberg (USA)

 
Cardiology:

Anna Maria Colli