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Please select a country below to view
contact information.
 
   

If you can not find your country listed here, but you want to be connected with other families from your nation please click here.

   
 
 
For people who are taking care for persons with CdLS
 

We can help you connect with another family in your area.
Simply fill out the form on this page and click Submit.
Fields marked with an asterisk (*) are required.

   
  TELL US ABOUT YOU
   
Name *
Street Address *
City *
Postal Code *
Country *
  (If you reside outside the United States and there is a National Association in your country, we will forward your information to them.)
Telephone *
E-mail *
   
  Have you contacted the International Foundation before? *
Yes      No
   
  TELL US ABOUT THE PERSON WITH CdLS IN YOUR LIFE
  Has a diagnosis of CdLS been confirmed?
Yes      No
   
  RELEASE INFORMATION
* To allow us to match you with another family, we need your permission to do so by checking the box at left.
   
Name *
Age *
Date of Birth *
Your Relationship to this Person *
 
ADDITIONAL COMMENTS (500 character maximum):

Please let us know more about your family and your wish to be matched. Do you wish to be matched with a family who has a child similar to yours, a family in your state, a person who may share the same concern? If you have anything else to share that will help us meet your need, please let us know that as well. Thank you.